"Life isn't about how to survive the storm,
but how to dance in the rain."

Friday, August 7, 2009

Friday – there will be a rain dance this evening – weather permitting!

Friday – there will be a rain dance this evening – weather permitting!

We may have a moment of respite- the drugs may finally be helping!
Another week is almost over and I can’t believe that so much had happened and yet so little seems to have happened. We have been up since about 4:30 – again – but this time it has been good! He used the thera-band to stretch his legs and then asked if I would mind if he turned on the Wii. Oh – ah puh-leeze NO! SO it is after 7:00 and I am making breakfast – coffee was a long time ago and he is still at the game – not as frustrated and not giving up as easily as usual.

Yesterday he sat at the keyboard and played it and for almost an hour and a half and then we went for a short walk last evening. We saw the neurologist (whom I was ready to kill last time) who was delighted with the progress of putting him back on the same pills and the adding the anxiety relief one. We upped the dose last night. And he seems happier … thank goodness and he seems better.

The fact that he has been able to spend more than ten minutes on one activity is outstanding- something that hasn’t happened in a long time.

At the doctor’s he got the day wrong- like always :0 – he thought it was Friday- he really loves Friday! But then he answered all the other questions not only correctly but with a lot of info- surprised the doc- then he didn’t allow us to be dismissed- but said he had questions for the doctor. This was another surprise for the learned medical man. SOoooo he felt really good about the visit – and the doctor was happy that he had made a difference in another person’s life- you could tell – and we were on our way home for an afternoon of music and amazing moments. It was all good!
I have a job - in fact I have one that I think will be very beneficial for this year. I start work early which mean an early release – so that should help with the appointments.

I was going to go and get my things from the school I was at last year – and I will next week. Summertime is supposed to return with Hot temps and humidity this weekend. Ugh! I really have enjoyed the cooler summer we have had this year.

I’m crossing my fingers – we didn’t make it to the support group Wednesday because he wasn’t able to get up – bug difference in 48 hours. Maybe I will get some sleep at night and maybe we can make it another couple months with this med.

A few more weeks and back to the routine … or creating a new routine. He didn’t go swimming this week at all. Instead he called his friend and begged off – saying he didn’t feel well – maybe that too will change!

Everything is OK!

Peace, love and harmony to all.